Pilot testing of the International Council of Cardiovascular Prevention and Rehabilitation Registry
| dc.contributor.author | Grace, Sherry | |
| dc.contributor.author | Elashie, Sana | |
| dc.contributor.author | Sadeghi Mahonak, Masoumeh | |
| dc.contributor.author | Papasavvas, Theodoros | |
| dc.contributor.author | Hashmi, Farzana | |
| dc.contributor.author | Lima de Melo Ghisi, Gabriela | |
| dc.contributor.author | LARA VARGAS, JORGE ANTONIO | |
| dc.contributor.author | Al-Hashemi, Mohammed | |
| dc.contributor.author | Turk-Adawi, Karam | |
| dc.date.accessioned | 2024-02-06T17:42:01Z | |
| dc.date.available | 2024-02-06T17:42:01Z | |
| dc.date.issued | 2023-07-03 | |
| dc.description | This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. | |
| dc.description.abstract | Background: The International Council of Cardiovascular Prevention and Rehabilitation developed an International CR Registry (ICRR) to support CR programs in low-resource settings to optimize care provision and patient outcomes. This study assessed: implementation of the ICRR, site data steward experience with on-boarding and data entry, and patient acceptability. Methods: Multi-method observational pilot involving: (1) analysis of ICRR data from 3 centers (Iran, Pakistan, Qatar) from inception to May 2022, (2) focus group with on-boarded site data stewards (also from Mexico, India), and (3) semi-structured interviews with participating patients. Results: 567 patients were entered. Based on volumes at each program, 85.6% of patients were entered in ICRR. 99.3% patients approached consented to participate. The average time to enter data at pre and follow-up assessments by source was 6.8-12.6 minutes. Of 22 variables pre-program, completion was 89.5%. Among patients with any follow-up data, of 4 program-reported variables, completion was 99.0% in program completers and 51.5% in non; of 10 patient-reported, variable completion was 97.0% in program completers and 84.8% in non. Proportion of patients with any follow-up data was 84.8% in program completers, with 43.6% of non-completers having any data entered other than completion status. Twelve data stewards participated in the focus group. Main themes were: valuable on-boarding process, data entry, process of engaging patients, and benefits of participation. Thirteen patients were interviewed. Themes were: good understanding of the registry, positive experience providing data, value of lay summary and eagerness for annual assessment. Conclusions: Feasibility and data quality of ICRR were demonstrated. | |
| dc.description.sponsorship | This work was supported by Qatar University (IRCC-2020-005) through Dr Karam Turk-Adawi and York University (no grant number) through Dr Sherry L Grace. Open Access funding provided by the Qatar National Library. | |
| dc.identifier.citation | Grace, S. L., Elashie, S., Sadeghi, M., Papasavvas, T., Hashmi, F., de Melo Ghisi, G., Lara Vargas, G., Al-Hashemi, M., Turk-Adawi, K. (2023). Pilot testing of the International Council of Cardiovascular Prevention and Rehabilitation Registry. International Journal for Quality in Health Care, 35(3), mzad050, https://doi.org/10.1093/intqhc/mzad050 | |
| dc.identifier.issn | 1464-3677 | |
| dc.identifier.uri | https://hdl.handle.net/10315/41815 | |
| dc.identifier.uri | https://doi.org/10.1093/intqhc/mzad050 | |
| dc.language.iso | en | |
| dc.publisher | International Journal for Quality in Health Care | |
| dc.rights | Attribution 4.0 International | en |
| dc.rights.uri | http://creativecommons.org/licenses/by/4.0/ | |
| dc.subject | Cardiac rehabilitation | |
| dc.subject | Quality Improvement | |
| dc.subject | Registry | |
| dc.subject | Feasibility Study | |
| dc.subject | Pilot test | |
| dc.title | Pilot testing of the International Council of Cardiovascular Prevention and Rehabilitation Registry | |
| dc.type | Article |