Pilot testing of the International Council of Cardiovascular Prevention and Rehabilitation Registry

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Date

2023-07-03

Authors

Grace, Sherry
Elashie, Sana
Sadeghi Mahonak, Masoumeh
Papasavvas, Theodoros
Hashmi, Farzana
Lima de Melo Ghisi, Gabriela
LARA VARGAS, JORGE ANTONIO
Al-Hashemi, Mohammed
Turk-Adawi, Karam

Journal Title

Journal ISSN

Volume Title

Publisher

International Journal for Quality in Health Care

Abstract

Background: The International Council of Cardiovascular Prevention and Rehabilitation developed an International CR Registry (ICRR) to support CR programs in low-resource settings to optimize care provision and patient outcomes. This study assessed: implementation of the ICRR, site data steward experience with on-boarding and data entry, and patient acceptability.

Methods: Multi-method observational pilot involving: (1) analysis of ICRR data from 3 centers (Iran, Pakistan, Qatar) from inception to May 2022, (2) focus group with on-boarded site data stewards (also from Mexico, India), and (3) semi-structured interviews with participating patients.

Results: 567 patients were entered. Based on volumes at each program, 85.6% of patients were entered in ICRR. 99.3% patients approached consented to participate. The average time to enter data at pre and follow-up assessments by source was 6.8-12.6 minutes. Of 22 variables pre-program, completion was 89.5%. Among patients with any follow-up data, of 4 program-reported variables, completion was 99.0% in program completers and 51.5% in non; of 10 patient-reported, variable completion was 97.0% in program completers and 84.8% in non. Proportion of patients with any follow-up data was 84.8% in program completers, with 43.6% of non-completers having any data entered other than completion status. Twelve data stewards participated in the focus group. Main themes were: valuable on-boarding process, data entry, process of engaging patients, and benefits of participation. Thirteen patients were interviewed. Themes were: good understanding of the registry, positive experience providing data, value of lay summary and eagerness for annual assessment.

Conclusions: Feasibility and data quality of ICRR were demonstrated.

Description

This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.

Keywords

Cardiac rehabilitation, Quality Improvement, Registry, Feasibility Study, Pilot test

Citation

Grace, S. L., Elashie, S., Sadeghi, M., Papasavvas, T., Hashmi, F., de Melo Ghisi, G., Lara Vargas, G., Al-Hashemi, M., Turk-Adawi, K. (2023). Pilot testing of the International Council of Cardiovascular Prevention and Rehabilitation Registry. International Journal for Quality in Health Care, 35(3), mzad050, https://doi.org/10.1093/intqhc/mzad050