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In the Hands of Strangers: The Myth of Choice and Self-Determination for Chronic Pain Patients in Ontario

In the Hands of Strangers: The Myth of Choice and Self-Determination for Chronic Pain Patients in Ontario

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Title: In the Hands of Strangers: The Myth of Choice and Self-Determination for Chronic Pain Patients in Ontario
Author: Dyson, Guadalupe Consuelo
Abstract: This study aimed to better understand and explain the lived experience of chronic pain patients within Ontario primary health care settings, their perceptions of self-determination, and the impact on their capacity to self-manage their condition and health-related quality of life.

Through in-depth interviews with 23 chronic pain (CP) patients, this research establishes an emergent theme of alienation as a key sensitizing characteristic of the experience of the research participants.

Self-Determination Theory suggests the management of pain is most effective when patients have a sense of agency and some measure of influence in their own health care. This view is consistent with the current provincial government policy of promoting Patient Centred Care (PCC).

The results of this study suggest that CP respondents experience feelings of alienation in the management of their condition. This experience is evidence of a lack of self-determination created by the inability of the health care professionals to effectively put into practice PCC.
Subject: Epidemiology
Keywords: Patient Centered Care
Chronic Pain Management
Primary Care
Ontario Health Care System
Patient Self-Determination
Decision Making
Health Coaching
Person Centered Care
Structural Competence in Clinical Models of Care
Type: Electronic Thesis or Dissertation
Rights: Author owns copyright, except where explicitly noted. Please contact the author directly with licensing requests.
URI: http://hdl.handle.net/10315/34508
Supervisor: Visano, Brenda L. S.
Degree: PhD - Doctor of Philosophy
Program: Sociology
Exam date: 2017-11-23
Publish on: 2018-05-28

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