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Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder

Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder

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Title: Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder
Author: Lai, Jonathan K. Y.
Weiss, Jonathan A.
Abstract: Individuals with Autism Spectrum Disorder (ASD) have a range of health, community, and social support needs across the lifespan that create age-specific challenges in navigating service sectors. In this study, we set out to identify the priority needs of individuals with ASD across the lifespan, and the factors that predict receiving priority services. Participants included 3,317 individuals with ASD from a Canada-wide online caregiver survey, stratified into five age groups(preschool, elementary school age, adolescence, emerging adulthood, adulthood). Priority receipt was calculated as a ratio of current services that corresponded to individualized priority need. Age-stratified Poisson regression analyses were used to identify the sociodemographic, clinical and systemic predictors of priority receipt. Results indicate that the distribution of priority need varied by age, except for social skills programming, which was a high across all groups.The number of high and moderate priority needs diversified with age. Overall, 30% of individuals had none of their priority needs met and priority receipt decreased with age. Systemic factors were most consistently related to priority receipt across the lifespan. Understanding patterns and correlates of priority needs and use that currently exist in different age groups can inform policies to improve service access.
Sponsor: The National ASD Needs Assessment Survey was administered by CASDA with financial support from The Public Health Agency of Canada (PHAC). All phases of this study were also funded by the Chair inAutism Spectrum Disorders Treatment and CareResearch to Dr. Weiss (#RN284208; Canadian Institutes of Health Research in partnership with Autism SpeaksCanada, the Canadian Autism Spectrum Disorders Alliance, Health Canada, NeuroDevNet and the Sinneave Family Foundation. Additional funds from York University).
Subject: autism spectrum disorder
predictors
service need
service receipt
priority needs
Type: Article
Rights: This is the pre-peer reviewed version of the following article: Lai, J. K. Y., & Weiss, J. A. (2017). Priority service needs and receipt across the lifespan with Autism Spectrum Disorder. Autism Research. doi: 10.1002/aur.1786 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1002/aur.1786/epdf. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for self-archiving. Attribution-NoDerivs 2.5 Canada
http://onlinelibrary.wiley.com/doi/10.1002/aur.1786/epdf
http://onlinelibrary.wiley.com/journal/10.1002/(ISSN)1939-3806
http://creativecommons.org/licenses/by-nd/2.5/ca/
URI: 10.1002/aur.1786
http://hdl.handle.net/10315/33010
Published: Wiley
Citation: Lai, J. K. Y., & Weiss, J. A. (2017). Priority service needs and receipt across the lifespan with Autism Spectrum Disorder. Autism Research. doi: 10.1002/aur.1786
Date: 2017-04-06

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This is the pre-peer reviewed version of the following article: Lai, J. K. Y., & Weiss, J. A. (2017). Priority service needs and receipt across the lifespan with Autism Spectrum Disorder. Autism Research. doi: 10.1002/aur.1786 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1002/aur.1786/epdf. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for self-archiving. Except where otherwise noted, this item's license is described as This is the pre-peer reviewed version of the following article: Lai, J. K. Y., & Weiss, J. A. (2017). Priority service needs and receipt across the lifespan with Autism Spectrum Disorder. Autism Research. doi: 10.1002/aur.1786 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1002/aur.1786/epdf. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for self-archiving.