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Factors associated with caregiver burden among parents of individuals with ASD: Differences across intellectual functioning

Factors associated with caregiver burden among parents of individuals with ASD: Differences across intellectual functioning

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Title: Factors associated with caregiver burden among parents of individuals with ASD: Differences across intellectual functioning
Author: Vogan, Vanessa
Lake, Johanna
Weiss, Jonathan A.
Robinson, Suzanne
Tint, Ami
Lunsky, Yona
Abstract: Symptoms of autism spectrum disorder (ASD) persist into adolescence and adulthood, when access to health services and supports become difficult. Consequently, most adolescents and adults with ASD remain reliant on their families for support, often resulting in caregiver burden among parents. This study aims to investigate factors associated with burden in parents of adolescents and young adults with ASD, and to understand how these factors differ across varying levels of intellectual functioning. Of the 297 parents sampled, ASD severity, externalizing behaviors, medical comorbidity, and parent age predicted burden in parents of adolescents and young adults with ASD and an intellectual disability (ID), whereas an inability to pay for services predicted burden in parents of individuals with ASD and no ID. Factors associated with caregiver burden differed among individuals with and without ID and were not limited to symptom severity or mental health problems, but also extended to system factors.
Sponsor: Canadian Institutes of Health Research (MOP 102677)
Subject: Autism Spectrum Disorder
Intellectual Disability
Caregiver Burden
Canada
Mental Health
Parents
Service System
Type: Article
Rights: This is the pre-peer reviewed version of the following article: Vogan, V., Lake, J. K., Weiss, J. A., Robinson, S., Tint, A., & Lunsky, Y. (2014). Factors associated with caregiver burden among parents of individuals with ASD: Differences across the spectrum. Family Relations, 63 (4), 554-567., which has been published in final form at DOI: 10.1111/fare.12081. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for self-archiving.
http://onlinelibrary.wiley.com/doi/10.1111/fare.12081/full
http://onlinelibrary.wiley.com/journal/10.1111/(ISSN)1741-3729
http://onlinelibrary.wiley.com/
URI: http://hdl.handle.net/10315/30596
Published: Wiley
Citation: Vogan, V., Lake, J. K., Weiss, J. A., Robinson, S., Tint, A., & Lunsky, Y. (2014). Factors associated with caregiver burden among parents of individuals with ASD: Differences across the spectrum. Family Relations, 63(4), 554-567.
ISSN: 1741-3729
Date: 02/09/2014

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