A Review of Emergency Visits made by Youth and Adults with Autism Spectrum Disorder from the Parent Perspective

dc.contributor.authorLunsky, Yona
dc.contributor.authorTint, Ami
dc.contributor.authorWeiss, Jonathan
dc.contributor.authorPalucka, Anna
dc.contributor.authorBradley, Elspeth
dc.date.accessioned2018-04-30T18:06:53Z
dc.date.available2018-04-30T18:06:53Z
dc.date.issued2018
dc.description.abstractPurpose: Past research has shown individuals with autism spectrum disorder (ASD) visit hospital emergency departments (ED) at high rates. In order to assist individuals with ASD, their families and health care providers to improve ED care, it is important to understand these encounters in greater detail. This study aimed to provide a descriptive summary of the ED experiences of adolescents and adults with ASD, from the perspective of their families. Design/Methodology/Approach: A subset of data from a larger prospective cohort study was used. Specifically, 46 parents of adolescents and adults with ASD provided details concerning 49 ED visits over a 12-month period. Findings: Results suggest a range of presentations requiring ED use, and also diverse profiles of those with ASD who visited the ED, in terms of age, gender, and ASD severity. While overall degree of satisfaction with care received in the ED was high, parents provided recommendations to improve the ED experiences for their family members with ASD. Originality/value: This is the first study to provide detailed accounts of ED visits from the perspective of parents of adolescents and adults with ASD. Families play an important role in the lives of individuals with ASD across the lifespan and it is important to include their perspective to improve hospital- based care for those with ASD.en_US
dc.identifier.citationAdvances in Autism, 4(1): 10-18
dc.identifier.issn2056-3868
dc.identifier.urihttps://doi.org/10.1108/AIA-08-2017-0019en_US
dc.identifier.urihttp://hdl.handle.net/10315/34458
dc.language.isoenen_US
dc.publisherEmerald Publishingen_US
dc.rightsThis article is © Emerald Publishing and permission has been granted for this version to appear here (https://doi.org/10.1108/AIA-08-2017-0019). Emerald does not grant permission for this article to be further copied/distributed or hosted elsewhere without the express permission from Emerald Group Publishing Limited.en_US
dc.rights.articlehttps://www.emeraldinsight.com/doi/abs/10.1108/AIA-08-2017-0019
dc.subjectAdolescentsen_US
dc.subjectAdulten_US
dc.subjectHospitalen_US
dc.subjectAutism spectrum disorderen_US
dc.subjectEmergency departmenten_US
dc.titleA Review of Emergency Visits made by Youth and Adults with Autism Spectrum Disorder from the Parent Perspective
dc.typeArticleen_US

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