What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities
| dc.contributor.author | Bender, Jacqueline | |
| dc.contributor.author | Katz, Joel | |
| dc.contributor.author | Ferris, Lorraine E. | |
| dc.contributor.author | Jadad, Alejandro R. | |
| dc.date.accessioned | 2014-10-14T22:36:29Z | |
| dc.date.available | 2014-10-14T22:36:29Z | |
| dc.date.issued | 2013-12 | |
| dc.description.abstract | Objective: To explore the role of online communities from the perspective of breast cancer survivors who are facilitators of face-to-face support groups. Methods: Seventy-three attendees (73% response rate) of a Canadian support group-training program completed a questionnaire examining when and why they used online communities. A purposive sample of 12 respondents was interviewed on how they used them in comparison to traditional supportive care. Survey responses were analyzed using descriptive statistics, and interview transcripts using a descriptive interpretive approach. Results: Online communities were used by 31.5%, mostly during treatment (73.9%), daily or weekly (91.3%), primarily for information (91.3%) and symptom management (69.6%) and less for emotional support (47.8%). Reasons for non-use were lack of need (48.0%), self-efficacy (30.0%), trust (24.0%), and awareness (20.0%). Respondents used online communities to address unmet needs during periods of stress and uncertainty. A multi-theory framework helps to explain the conditions influencing their use. Conclusion: Online communities have the potential to fill gaps in supportive care by addressing the unmet needs of a subgroup of breast cancer survivors. Further research is required among typical cancer survivors. Practice implications: Online communities could play an important role as a supplemental resource for a sub-group of breast cancer survivors. | en_US |
| dc.description.sponsorship | This work was supported by CIHR Strategic Doctoral Fellowships in Health Care, Technology and Place, and Cell Signaling in Mucosal Inflammation and Pain. Dr. Jadad, who is a mentor in both of these programs, was supported by the Canada Research Chair in eHealth Innovation and the University Health Network. | |
| dc.identifier.citation | Bender, J.L., Katz. J., Ferris, L.E., Oh, H., & Jadad, A.R. (2013). What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities. Patient Education & Counselling, 2013 Dec;93(3):472-479. doi: 10.1016/j.pec.2013.07.009. Epub 2013 Aug 6. | |
| dc.identifier.issn | 0738-3991 | |
| dc.identifier.uri | http://hdl.handle.net/10315/27959 | |
| dc.language.iso | en_US | en_US |
| dc.publisher | Elsevier | en_US |
| dc.rights.article | http://www.pec-journal.com/article/S0738-3991(13)00285-1/pdf | |
| dc.rights.journal | http://www.journals.elsevier.com/patient-education-and-counseling/ | en_US |
| dc.rights.publisher | http://www.elsevier.com/ | en_US |
| dc.subject | Breast cancer, Peer support, Online communities, Internet Supportive care | en_US |
| dc.title | What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities | |
| dc.type | Article | en_US |