Predictors of Changes in Daily Activity in Transition‐Age Autistic Youth

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dc.contributor.authorWeiss, Jonathan A
dc.contributor.authorLai, Jonathan KY
dc.contributor.authorLee, Vivian
dc.contributor.authorLunsky, Yona
dc.date.accessioned2024-10-04T17:33:15Z
dc.date.available2024-10-04T17:33:15Z
dc.date.issued2020-09-09
dc.description.abstractTransitioning into adulthood is fraught with challenges for autistic youth. A greater understanding of the facilitators of community involvement in school and employment during this period is warranted. The current study examines changes in service need and receipt, and the stability of accessing daily structured activities, for autistic young adults over their transition period compared to adolescents and adults that did not enter the transition period. Baseline caregiver survey data were taken from the Canadian Autism Spectrum Disorders Alliance National Autism Needs Assessment Survey in 2014, and caregivers (n = 304) completed the same set of questions in 2017 about sociodemographic factors, clinical need, service receipt and typical weekday activities. Three cohorts were compared: (1) pretransition age youth, (2) transition-age youth, and (3) young adults who were past transition age. Results suggest that transition-age youth were found to have a unique set of priority service needs compared to pre transition-age adolescent and to adult groups, and both transition-age and adult groups had lower levels of priority service receipt compared to pretransition-age adolescents. The transition-age group experienced the greatest loss of structured weekday activity between time points, and were more likely than pretransition-age adolescents to not have structured weekday activities at Time 2. A recovery of structured daily activity was not observed in young adults. Our results highlight the tumultuous nature of the transition period for autistic youth, which continues into adulthood, and the urgent need for supports during this time. Lay Summary: This research highlights that autistic young people who are transitioning to adulthood are at greatest risk of losing structured weekday activities, and that once in adulthood, many continue to struggle to obtain meaningful community engagement. These results can help guide the design of adolescent and young adult transition programs.
dc.format.mediumPrint-Electronic
dc.identifier.citationWeiss, J.A., Lai, J.K.Y., Lee, V. and Lunsky, Y. (2021), Predictors of Changes in Daily Activity in Transition-Age Autistic Youth. Autism Research, 14: 324-332. https://doi.org/10.1002/aur.2371
dc.identifier.issn1939-3792
dc.identifier.issn1939-3806
dc.identifier.urihttps://doi.org/10.1002/aur.2371
dc.identifier.urihttps://hdl.handle.net/10315/42348
dc.language.isoen
dc.publisherWiley
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internationalen
dc.rights.publisherCC BY-NC-ND
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectPaediatrics
dc.subjectBiomedical and clinicalsSciences
dc.subjectBehavioral and social science
dc.subjectMental health
dc.subjectAutism
dc.subjectPediatric
dc.subjectClinical research
dc.subjectIntellectual and developmental disabilities (IDD)
dc.subjectBrain disorders
dc.subjectSurveillance and distribution
dc.subjectActivities of daily living
dc.subjectAdolescent
dc.subjectAutistic disorder
dc.subjectCanada
dc.subjectCaregivers
dc.subjectHumans
dc.subjectYoung Adult
dc.subject.meshActivities of Daily Living
dc.subject.meshAdolescent
dc.subject.meshAutistic Disorder
dc.subject.meshCanada
dc.subject.meshCaregivers
dc.subject.meshHumans
dc.subject.meshYoung Adult
dc.subject.meshHumans
dc.subject.meshActivities of Daily Living
dc.subject.meshAutistic Disorder
dc.subject.meshAdolescent
dc.subject.meshCaregivers
dc.subject.meshCanada
dc.subject.meshYoung Adult
dc.subject.meshActivities of Daily Living
dc.subject.meshAdolescent
dc.subject.meshAutistic Disorder
dc.subject.meshCanada
dc.subject.meshCaregivers
dc.subject.meshHumans
dc.subject.meshYoung Adult
dc.symplectic.issue2
dc.symplectic.journalAutism Research
dc.symplectic.pagination324-332
dc.symplectic.subtypeJournal article
dc.symplectic.volume14
dc.titlePredictors of Changes in Daily Activity in Transition‐Age Autistic Youth
dc.typeArticle

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